Prof. Dr. med. Dr. phil.

Eva Winkler

National Center for Tumor Diseases Heidelberg

Focus of the commitment in the German Ethics Council

  • Medical ethics
  • Data ethics
  • Research ethics (genome research / genomic newborn screening)

Professional background

  • Since 2024: Designated Vice Dean for Digitalisation and Young Talent Development at the Medical Faculty at the University of Heidelberg
  • Since 2022: Member of the Executive Board of the National Center for Tumor Diseases (NCT) Heidelberg
  • Since 2019: Professor for Translational Medical Ethics (Heisenberg Professorship until 2024) at the Medical Faculty at the University of Heidelberg
  • Since 2013 Spokesperson of the interdisciplinary research platform EURAT („Ethical and Legal Aspects of Translational Medicine“) at the University of Heidelberg
  • Since 2012 Senior Physician in Medical Oncology at the National Center for Tumor Diseases (NCT) Heidelberg
  • 2015–2019 Adjunct Professor for Internal Medicine and Medical Ethics at the Medical Faculty of the University of Heidelberg
  • 2016 Specialist in haematology and oncology, additional qualification in palliative medicine
  • 2011 Habilitation (venia legendi for Internal Medicine and Medical Ethics) at the Ludwig Maximilian University of Munich
  • 2011 Specialist in internal medicine
  • 2006–2010 Doctorate (Dr. phil.) in Medical and Health Ethics at the University of Basel
  • 2004 Fellowship at the Massachusetts General Hospital, Boston (USA)
  • 2002–2004 Research Fellowships in Medical Ethics at the Department of Medical Ethics, Harvard Medical School and at the Edmond and Lily Safra Ethics Center at the John F. Kennedy School of Government (USA)
  • 2000–2010 Specialist medical training in haematology and oncology at the Großhadern Hospital of the Ludwig Maximilian University of Munich
  • 1994–2000 Doctorate (Dr. med.) in Cancer Research at the University of Heidelberg
  • 1992–1999 Medical Studies at the University of Heidelberg and the Free University of Berlin

Memberships

  • Since 2024 Member of the German Ethics Council
  • Since 2024 Member of the Commission for Genomic Newborn Screening of the German Society of Human Genetics
  • Since 2023 Chairwoman of the Central Ethics Committee at the German Medical Association, since 2020 Member of the Board
  • Since 2022 Vice President of the Academy for Ethics in Medicine, since 2016 Member of the Board
  • Since 2022 Member of the Expert Council of the National Strategy for Genome Medicine genomDE of the Federal Ministry of Health
  • Since 2022 Member of the Scientific Board of Trustees of the Protestant Institute for Interdisciplinary Research, Heidelberg
  • Since 2022 Member of the Ethics Advisory Board of the EU project „Genomic Data Infrastructure“
  • Since 2022 Member of the Ethics Advisory Board of the NAKO Health Study
  • Since 2020 Member of the Board of Directors of the German Human Genome-Phenome Archive (GHGA)
  • Since 2020 Member of the EU initiative „1+Million Genomes“
  • Since 2014 Member of the „Regulatory and Ethics Working Group“ of the Global Alliance for Genomics & Health
  • Since 2009 Chair of the working group „Medicine and Ethics“ of the German Society of Haematology and Medical Oncolog

Distinctions

  • 2024 The Bartha Maria Knoppers Annual Lecture of the Center for Genomics and Policy at McGill University, Montreal (CAN)
  • 2017 DMW Walter Siegenthaler Prize
  • 2016 Lohfert Prize of the Christoph Lohfert Foundation
  • 2011 Faculty Prize of the University of Basel

Selected publications

  • Wabro, A.; Herrmann, M.; Winkler, E.C. (2024): When time is of the essence: ethical reconsideration of XAI in time-sensitive environments. Journal of Medical Ethics, [online first]. DOI: 10.1136/jme-2024-110046
  • Bruns, A.; Winkler, E.C. (2024): Dynamic consent: a royal road to research consent? Journal of Medical Ethics, [online first]. DOI: 10.1136/jme-2024-110153
  • Alex, K.; Winkler, E.C. (2024): Comparative ethical evaluation of epigenome editing and genome editing in medicine: first steps and future directions. Journal of Medical Ethics, 50 (6), 398–406. DOI: 10.1136/jme-2022-108888
  • Carrera, P.M.; Curigliano, G.; Santini, D.; Sharp, L.; Chan, R.J.; Pisu, M.; Perrone, F.; Karjalainen, S.; Numico, G.; Cherny, N.; Winkler, E.; Amador, M.L.; Fitch, M.; Lawler, M.; Meunier, F.; Khera, N.; Pentheroudakis, G.; Trapani, D.; Ripamonti C.I. (2024): ESMO expert consensus statements on the screening and management of financial toxicity in patients with cancer. ESMO Open, 9 (5), 102992. DOI: 10.1016/j.esmoop.2024.102992
  • Herrmann, M.; Wabro, A.; Winkler, E. (2024): Percentages and reasons: AI explainability and ultimate human responsibility within the medical field. Ethics and Information Technology, 26, 26. DOI: 10.1007/s10676-024-09764-8
  • EURAT (2023): Position paper on the return of additional genetic findings in minors. Forum Marsilius-Kolleg. DOI: 10.11588/fmk.2023.23.100566
  • Dalpé, G.; Huerne, K.; Dupras, C.; Cheung, K.; Palmour, N.; Winkler, E.; Alex, K.; Mehlman, M.; Holloway, J.W.; Bunnik, E.; König, H.; Mansuy, I.M.; Rots, M.G.; Erwin, C.; Erler, A.; Libertini, E.; Joly, Y. (2023): Defusing the legal and ethical minefield of epigenetic applications in the military, defense, and security context. Journal of Law and the Biosciences, 10 (2), lsad034. DOI: 10.1093/jlb/lsad034
  • Winkler, E.C.; Jungkunz, M.; Thorogood, A.; Lotz, V.; Schickhardt, C. (2023): Patient data for commercial companies? An ethical framework for sharing patients’ data with for-profit companies for research. Journal of Medical Ethics, [online first]. DOI: 10.1136/jme-2022-108781
  • Köngeter, A.; Schickhardt, C.; Jungkunz, M.; Bergbold, S.; Mehlis, K.; Winkler, E.C. (2022): Patients’ willingness to provide their clinical data for research purposes and acceptance of different consent models: findings from a representative survey of patients with cancer. Journal of Medical Internet Research, 24 (8), e37665. DOI: 10.2196/37665
  • Winkler, E.C.; Knoppers, B.M. (2022): Ethical challenges of precision cancer medicine. Seminars in Cancer Biology, 84, 263–270. DOI: 10.1016/j.semcancer.2020.09.009
  • EURAT (2020): Position paper on the release of raw genomic data to patients and study participants. Forum Marsilius-Kolleg. DOI: 10.11588/fmk.2020.0.76125