Hedy Kerek-Bodden
House of Cancer Self-Help – Federal Association
Christian Thiel/Deutscher Ethikrat
Focus of the commitment in the German Ethics Council
- Inclusion of the experiential expertise of oncological patients and of people with a hereditary disposition for cancer and their relatives
- Participation of independent cancer self-help in research and care
- Civic engagement in voluntary work
Professional background
- Since 2021 Chairwoman, House of Cancer Self-Help – Federal Association
- 2020–2024 Chairwoman of the Board, Women's Self-Help Cancer Federal Association
- 2019–2021 Recording Clerk, House of Cancer Self-Help – Federal Association
- 2017–2019 Member of the Board, House of Cancer Self-Help – Federal Association
- 2016–2020 Member of the Board, Women's Cancer Self-Help – Federal Association
- 2014–2016 Deputy Chairwoman, Women's Cancer Self-Help – Regional Association North Rhine-Westfalia
- Since 2013 Deputy Head / Head of the Self-Help Group Krefeld, Women's Cancer Self-Help – Regional Association North Rhine-Westfalia
- Research Associate (Project Manager) in the research area of epidemiology and social medicine at the Central Institute of Statutory Health Care
- Studies of Business Administration and Health Economics at the University of Mannheim
- Institute for Medical Information Processing, Statistics and Biomathematics at the University of Munich
- School for Medical Documentation Assistants at the University of Ulm
Memberships
- Since 2024 Member of the German Ethics Council
- Since 2023 Member of the Scientific Committee of the Centre for Cancer Registry Data at the Robert Koch Institute
- Since 2021 Member of the Strategy Group of National Decade Against Cancer
- Since 2021 Patient representative, Board of the German Cancer Society
- Since 2020 Member of the Advisory Board at the Centre for Competence Development in Cancer Self-Help at the University Hospital Freiburg
- Since 2018 Patient representative, Federal Joint Committee
- Since 2017 Member of the German Society of Senology and Member of the Scientific Advisory Board
- Since 2017 Member of the Steering Group of National Cancer Plan
- Since 2013 Member of Women's Cancer Self-Help
Selected publications
- Mählmann, S.; Kerek-Bodden, H.; Weis, J. (2024): Online peer support meetings for women with metastatic cancer: a pre-post evaluation. (Manuscript submitted for publication.)
- Breuning, M.; Mählmann, S.; Kerek-Bodden, H.; Oettlin, S.; Weis, J. (2024): Family caregivers of cancer patients: burdens and support preferences of partner, parent and adult-child caregivers. Psycho-Oncology, 33 (9), e9310. DOI: 10.1002/pon.9310
- Kerek-Bodden, H. (2023): Patientenbeteiligung der unabhängigen Krebs-Selbsthilfe. Professionalisierung, Ressourcen und Qualifikation. Forum, 38 (4), 299–304. DOI: 10.1007/s12312-023-01219-3
- Kerek-Bodden, H. (2023): „Eine einzigartige Sicht“. Für Hedy Kerek-Bodden sind Patienten wichtige Forschungspartner. Gerechte Gesundheit, 64, 20–21.
- Klein, A.; Kerek-Bodden, H.; Labouvie, H.; Hallek, M.; Kusch, M. (2022): Patientenbeteiligung am Beispiel des Innovationsfondsprojekts isPO (integrierte, sektorenübergreifende Psychoonkologie) am onkologischen Spitzenzentrum CIO der Uniklinik Köln.
- Kusch, M. et al. (2022): Integrated, cross-sectoral psycho-oncology (isPO): a new form of care for newly diagnosed cancer patients in Germany. BMC Health Services Research, 22, 543. DOI: 10.1186/s12913-022-07782-0
- Rackerseder, J.; Hornbach, C.; Dicks, P.; Kerek-Bodden, H.; Krieger, T. (2022): Designing a patient-friendly website for newly diagnosed cancer patients with the participatory health research approach. International Journal of Environmental Research and Public Health, 19 (4), 1969. DOI: 10.3390/ijerph19041969
- Beuteführ, D.; Kusch, M.; Klein, A.; Kerek-Bodden, H.; Bruland-Saal, H. (2021): Von Betroffenen für Betroffene. isPO-Onkolots*innen im Einsatz – ein Erfahrungsbericht. Forum, 36 (5), 400–402. DOI: 10.1007/s12312-021-00980-7
- Kofahl, C.; Houwaart, S.; Kerek‑Bodden, H.; Stark, M.; Wiegand, N.; Ziegler, E. (2021): Patientenbeteiligung und -vertretung durch die Krebs-Selbsthilfe. Ergebnisse einer Umfrage mit 204 Leiter*innen von Krebs-Selbsthilfegruppen. In: Deutsche Arbeitsgemeinschaft Selbsthilfegruppen (ed.): Selbsthilfegruppenjahrbuch 2021. Gießen: DAG SHG, 98–107.